This year has been a big one as my little guy started kindergarten and I went back to work outside the home. It has been a big adjustment for us all! We’ve had some hurdles here and there but we found our rhythm and everything has gone better than I expected.
It’s been almost a year since my last post so let’s see……
Colin update: He has done SO well at school. He has an amazing teacher who has helped us with the big transition to kindergarten! We still don’t have definitive answer for why Colin struggles with food and pain so much. His ultrasound series and barium swallow came up with nothing. Doctors keep coming back to eosinophilic esophagitis. Although his first scope didn’t find evidence of eosinophils, two doctors have now said they think that a future scope will find it. The other theory is that he is experiencing functional digestive pain along with whatever they’ve yet to diagnose or due to his history of having so many food issues. We don’t have any new meds or leads for now. We actually did some therapy to help with pain management techniques. It does help him a lot, especially at night when his pain is the worst. We are trying to decide if we should agree to another scope. Part of that answer may depend on his sister….
Yes, our older one has started showing signs of swallowing issues and digestive pain. Although its been creeping up slowly over the last few years, it’s really been rearing its head the last 6-8 months. What we originally thought was just classic acid reflux, hasn’t responded to several different medications and so she’s headed off to her first scope soon. I’ve had a few moments of “Oh no! Not you too!” but for the most part we are just taking it in stride. We’ve been down this road. My daily prayer is that they will FIND AN ANSWER because not knowing is truly the hardest part.
So on to more fun things…. like Cooking!
We had our kitchen redone!! This was a plan 12 years in the making and we couldn’t be happier. No more purple countertops or broken cabinets! I have a wonderful island that makes working in our kitchen so much easier. During the renovation I cooked most of our meals in an electric skillet on top of our dryer in the basement. It was hilarious, sometimes ridiculous and often not what I’d call delicious, but it was worth it!
Safe Foods Update: Although we don’t strictly avoid soy anymore, we stay away from soy flour. We also avoid oats, chocolate and dairy. I’ve had a few new dairy free finds that I’ve really loved and will be sharing them with you this week. We are on spring break so I’ve been trying out some new recipes and having adventures with my two little goofballs!
If you have any spring foods you are loving, feel free to share below!