I realized over my Thanksgiving meal that I had made it a whole year on this crazy allergy elimination diet. Last year all the diet restrictions were new and all I ate was cranberries and turkey. This year I had a whole plate of wonderful and safe foods. Granted, I’ve been able to add a few things to my diet but the majority of things were safe foods I’d found or created. I realized how far I’ve come, learning and making accommodations to make this diet/lifestyle possible and how much Colin has improved.
Last year at this time Colin was about two months old and well into the nightmarish colic phase. He started screaming by 8pm and it lasted 4-7 hours. My husband and I were trading off who had “Colic Duty” shifts to keep our sanity. Colin leaked milk whenever you laid him down so sleep was terrible. He had constant diarrhea, blood in his diaper, an allergy diaper rash, eczema all over his face and belly, was spitting up/vomiting profusely and when he was awake, he was often arching his back and waving his arms around. In between all of this he was a smiler, believe it or not, but boy was he having a rough time. I had just begun removing things from my diet, starting with milk and then soy.
Fast forward to today. We have a diagnosis for Colin. (FPIES/MSPI/Food Protein Enteropathy) I removed lots of food triggers from my diet and we are in a good place. The colic is gone. Thank Goodness!!! Colin is nursing but also eating solid foods (I wasn’t sure we’d ever find safe ones). He can eat chicken, corn, carrots, rice, wheat, bananas and apples. When we arent’ food trialing his reflux is gone, diaper rash and eczema are rare and his diaper contents are normal. He is a super happy giggly active little guy running around meeting all his milestones with ease. He isn’t a great sleeper, but with his history and sleep disruptions during food trials, it’s not a surprise. We are so thankful we are for where we are right now.
When I began the MSPI diet, followed by eliminating many other food triggers, I was depressed, starving and clueless as to what to eat. I did a lot of label reading and internet surfing. I started a word document to keep track of the foods I could eat and it became the beginning of this blog. Although the deprivation of this diet is still really hard, as you can see by my recipes/snacks/products pages, I’ve got a decent number of foods I can eat and use for cooking. I’ve also found lots of other websites, blogs, and allergy recipe pages to help augment my menu. If you are just starting out, know that it is tough, the learning curve is huge but you CAN do this for your child! I never would have thought I could make it this far, but I’m really proud that I have and I’ve been able to get Colin to a healthier place.