So maybe I jinxed myself by saying that my son had graduated from MSPI. Maybe we’re just moving onto the next phase of his body saying “Food and I are not friends.” Whatever the reason, we are back to dairy free in our house.
We had another major downturn in Colin’s ability to eat over the winter. (I actually wrote a long post when I felt really defeated but didn’t publish it.) Whereas last year Colin had severe esophageal spasms, this time it was mostly chronic, often debilitating nausea. Colin lost interest in food, woke up in pain every night, became more upset about leaving the house and lost weight. It was rough.
Five months, several doctors and a variety of hospital tests later, we still don’t have a clear diagnosis. The most popular theory is that he has Eosinophilic Esophagitis. It is basically allergy cells in the throat that shouldn’t be there. There is no cure but there are some medication options to help manage it. Two doctors said they’d bet this is what Colin has, but they think it won’t be caught/diagnosed until it does more damage to Colin’s throat. The days he is in pain I get really mad that they can’t figure this out. Thankfully he has good days and he is one tough kid.
Taking dairy back out of his diet has been helping somewhat with his esophageal pain and his nausea. I’m glad I have the resources and experience under my belt to get back to living dairy free. It has been a bit harder though, since Colin’s had a taste of the good stuff and isn’t super happy about removing things like his favorite waffles. He’s figured out that staying off dairy helps him feel better so that’s more than half the battle.
So I’ll be posting more here as I’m back to reading every label and finding new recipes.
As always, feel free to share any dairy free or MSPI friendly food finds you love and keep fighting the good fight!